Tumor status: stable

 

Tumor highlighted
Brett and I made the trek to Redwood City to see my neuro-oncology posse and we learned two great things.
  1. My tumor is stable (i.e., not growing). This means it continues to respond well to Temodar (chemotherapy).
  2. Instead of coming to Redwood City every two months my appointments will now be scheduled three months apart.
Of course this is all good news for my health but what gives me the biggest sigh of relief is knowing I don't need to ask my new boss for another day off from work anytime soon. I know, this sounds like a case of misplaced priorities, but I fear being the needy "new girl" who asks for time off before she even pays her dues.
Liz Salmi

Liz Salmi is Communications & Patient Initiatives Director for OpenNotes at Beth Israel Deaconess Medical Center in Boston. Over the last 15 years Liz has been: a research subject; an advisor in patient stakeholder groups; a leader in “patient engagement” research initiatives; and an innovator, educator and investigator in national educational and research projects. Today her work focuses on involving patients and care partners in the co-design of research and research dissemination. It is rumored Liz was the drummer in a punk rock band.

https://thelizarmy.com
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Ask the Girl with Brain Cancer #1