Happy cancer-versary to me.It was on this day last year that I was "officially" informed, in person, by my neurosurgeon that I did indeed have a cancerous brain tumor. (Unlike many brain cancer peeps, my tumor was surrounded in controversy.)Here I am one year later, relatively seizure-free, fully functional, taking Temodar. And oh yeah, I am going to be in a fashion show tonight.
Liz Salmi is Communications & Patient Initiatives Director for OpenNotes at Beth Israel Deaconess Medical Center in Boston. Over the last 15 years Liz has been: a research subject; an advisor in patient stakeholder groups; a leader in “patient engagement” research initiatives; and an innovator, educator and investigator in national educational and research projects. Today her work focuses on involving patients and care partners in the co-design of research and research dissemination. It is rumored Liz was the drummer in a punk rock band.
