I am supposed to start another round of Temodar in about a week, but I can’t remember which number I’m on. I mean, I can easily go into my calendar, or look at past e-mails with my neuro-oncologist, but if I were to rely on memory right now I am teetering between number 20 or number 21. Maybe 22? Nah, 22 is too cool to be me right now.
I used to be religious about keeping track of how many months I had been on the drug and how many months I had left to go. I remember after the last cycle climbing the stairs to my condo thinking, “I wonder how I will feel X months from now when I am on my last Temodar cycle.” That was just three weeks ago! How can I already have forgotten that significant thought?
Everyone I have personally “met” (though blogs or otherwise) who has taken Temodar is done with it. Erin took it for six months. Liz Z. took it for six months. Brett G. took it for a few months before his doctors realized it wasn’t working for him. Kent just finished his final 12-month treatment. Granted, they all took higher dosages than me because their tumor grades are higher (3-4) and also had radiation, so they couldn’t be on it as long. Other grade 2+’s had different treatment–David had it for six months along with radiation. (Correct me if I’m wrong, David.)
I feel fortunate to not have radiation, but I feel like I’m the only one left on Temodar. Like a kid who never learned their multiplication tables and had to be held back a grade.
But that’s not true. There are hundreds of us on Temodar and I just don’t know who you are.
Hello. My name is Liz, and I am on cycle 21 or 22 of Temodar (whatever). Nice to meet you.