Thursday 28th August 2014,
The Liz Army

Open thread: What does “supporting a cure” look like to you?

Liz September 18, 2013 Brain Tumor Advocacy 5 Comments
Photo by @CraigClarke on Instagram at http://instagram.com/p/d7NokVHvAh

Recently a woman posted a comment to one of my blog posts expressing her frustration with business as usual when it comes to brain tumor treatment.

She said:

I want to start supporting a cure, and am very interested to hear new and promising avenues of treatment besides traditional chemo and radiation.

She brings up a good point about chemo and radiation (and surgery). For the most part, none of us are truly cured–these are merely stop-gap measures to slow our tumor growth and buy us time until the next treatment is available.

But what piqued my interest is the first part of her statement: I want to start supporting a cure.

What does supporting a cure look like?

To me “supporting a cure” is being an advocate with the National Brain Tumor Society. I enjoy public policy and am a fan of the West Wing (which qualifies me to talk to Congress) (not really), so being an advocate is how I am supporting a cure.

But that is just one way to support a cure, and it is one of the more extreme ways. But I want to know what you think… What does supporting a cure to brain cancer look like to you?

Is it wearing a gray ribbon? Taking part in a walk? Donating some money? Driving a friend to treatment? Tweeting about brain tumor symptoms on Twitter?

There are no wrong answers. I am just curious.

Shout out to @CraigClarke on Instagram for this great photo of his wife currently in treatment.

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  • Cassandra

    Most of the above but as I’m British I wear a GREY ribbon :-) Not taken part in a walk either as I’m not good at asking for money. I’ve also been to 3 Charity Balls now, very glamorous & fun occasions and raising awareness & funds at the same time. Oh, yes, one other thing, I sell enamel grey ribbons to the public & wholesale them to brain tumour fundraisers.

  • Allison

    If we want a cure we must support the 2 things that will lead to a cure: money and scientific collaboration. New treatments from recent discoveries are in the pipieline, but research takes gobs of money and scientists sharing their findings to expedite the process. Although it is uncomfortable to ask for money, that is what we must do.

  • Cameron Von St James

    Hey I have a quick question
    about your blog, could you email me when you have a chance? Thanks! -Cam

  • Cliu

    This is an interesting question, and I think the answer for me is trying to bring more awareness to brain cancers. This is national Breast Cancer awareness month, and everywhere I look there is pink (the NFL is swimming in pink) and I think that they have done a really good job of publicizing breast cancer awareness. It may be very difficult to do the same with brain cancers as they are not as prevalent, however through my own diagnosis I have found that there are so many people who have known someone with brain cancer, so it might be easier than I think.

  • Pseudo uncle Bon

    1. Get people to vote out the Tea Party and replace them with congressmen or women who give a damn.
    2. Get people to lobby a caring congress to enact legislation directed towards the coordination of research for a cure through an agency such as NIH.
    3. Get people to lobby those same caring legislators to fund the coordinated effort to find a cure.
    It is, as with all things today, all about politics, and until there is a coordinated effort with enough money to induce the best experts any effort is too piecemeal to get where we need to get…to a cure for the best and the brightest, like Liz.
    4. Get someone to champion the effort…Liz?