I'm going through the medical journal I began last July when all this brain stuff began and I am adding things to this blog that were never posted here before.
An interesting time to read about is when this all began in July/August 2008. It's crazy remembering all the seizures I endured. I hated that time, and I'm glad I've had two brain surgeries.
Liz Salmi is Communications & Patient Initiatives Director for OpenNotes at Beth Israel Deaconess Medical Center in Boston. Over the last 15 years Liz has been: a research subject; an advisor in patient stakeholder groups; a leader in “patient engagement” research initiatives; and an innovator, educator and investigator in national educational and research projects. Today her work focuses on involving patients and care partners in the co-design of research and research dissemination. It is rumored Liz was the drummer in a punk rock band.
