What would you say to the most influential people in the brain tumor community?

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If you had 5-7 minutes to talk in front of some of the most influential people in the brain tumor community, what would you say?

On October 3, 2013, I am receiving the Community Leadership award from the National Brain Tumor Society. I am accepting this award at the NBTS Annual Summit in Boston, MA, and have the opportunity to talk to a room full of brain tumor researchers and NBTS major donors. 

If you've seen my TEDx Talk, you know I have no problem speaking to crowds about brain cancer. But I don't need to tell this audience about what it is like to have brain cancer.

I am struggling with what I should say. I don't want to preach to the choir. They already know we need more money for research. They know oral forms of chemotherapy aren't equally covered by all health insurers. They know there are more than 130 different kinds of brain tumors and that brain cancer is the #1 cancer killer in children.

What would you say?

Tell me your ideas in the comments section. I want to crowdsource your ideas and tell our story to this important audience on October 3.

If a combination of your ideas and my ideas turn out to be brilliant, I will post the speech in the next few weeks. But that is only if we can be brilliant together.

Liz Salmi

Liz Salmi is Communications & Patient Initiatives Director for OpenNotes at Beth Israel Deaconess Medical Center in Boston. Over the last 15 years Liz has been: a research subject; an advisor in patient stakeholder groups; a leader in “patient engagement” research initiatives; and an innovator, educator and investigator in national educational and research projects. Today her work focuses on involving patients and care partners in the co-design of research and research dissemination. It is rumored Liz was the drummer in a punk rock band.

https://thelizarmy.com
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