Patient & Researcher Blog

Here I aim to capture what I am learning as a newbie researcher from a patient perspective.

Living with a slow growing brain cancer

It is taboo for researchers to talk about their work before it is published.

I think that’s a bummer.

 

My favorite part about research is learning new things in real time. Here I share my observations as a learner and my n of 1 (personal) findings as a patient.

Note: I started blogging about brain cancer in 2008, at age 29.

I had no background or knowledge about healthcare when I began. Please excuse typos and other misconceptions. What you read here is me in real time, like a time capsule.

There are more than 500 posts here. Use this search to look for something specific. Good luck!

Liz Salmi Liz Salmi

Adapting to life without driving: Navigating the gap between gas & brake pedals

The realization that adaptive features are not covered by insurance—medical or otherwise—highlights the societal belief that driving is a privilege rather than a right. Those with the greatest access to financial resources and time will be among the few who can reap the benefits from adaptive driving technologies. I can see myself advocating for and contributing to policy changes that challenge the perspective that driving is a privilege. And that first step may involve admitting that I have a disability in the first place.

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Liz Salmi Liz Salmi

Note to self: Preparing for 4th Brain Surgery

If it’s too hard to use your right hand, use your left. If it feels really hard today, you are making progress for tomorrow (it gets better and you get stronger). Don’t be sad at what you lost, because you are rebuilding, always becoming something greater than before.

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Liz Salmi Liz Salmi

Stronger Than Ever: Liz Salmi in Sacramento Magazine

This article describes the work I have been doing to redefine the patient role in health care, research, and medical education… I felt validated to be featured here after the last year of my life where I faced a lot of unseen challenges.

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Liz Salmi Liz Salmi

Hello from the other side of brain surgery

Hello everyone! It's me, Liz! I'm officially back from the other side of surgery, although my language and math skills are still very much on the mend. I hope you can bear with me as I relay this very personal update.

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Brain surgery: the inside story (pun slightly intended)

I tell people brain surgery is easier than they think. The doctors put you to sleep and then you wake up X-amount of hours later and you never know what happened because you were asleep! You hurt, and you have to take it easy for a long time, and you can't go on any roller coasters for a while, but other than that it is all good.

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Surviving Liz Salmi Surviving Liz Salmi

Erin: founding member

But in the spirit of Erin and her outright frankness, I feel it is my duty to admit that she will be next, in a line of amazing people I've known, to lose their life to a brain tumor.

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