Patient & Researcher Blog
Here I aim to capture what I am learning as a newbie researcher from a patient perspective.
Living with a slow growing brain cancer
It is taboo for researchers to talk about their work before it is published.
I think that’s a bummer.
My favorite part about research is learning new things in real time. Here I share my observations as a learner and my n of 1 (personal) findings as a patient.
Note: I started blogging about brain cancer in 2008, at age 29.
I had no background or knowledge about healthcare when I began. Please excuse typos and other misconceptions. What you read here is me in real time, like a time capsule.
There are more than 500 posts here. Use this search to look for something specific. Good luck!
Nothing else will be scary again: my goal for 2015
And here I am, making a conscious decision to do something that takes eight months of commitment--eight months of training to do something intimidating, and awkward, and difficult. But I can’t say it is scary because I told myself six years ago that nothing would be scary ever again.
What I wish I knew before my brain was diagnosed with cancer
The most frustrating part of cancer is that it doesn’t discriminate. Cancer doesn’t care for whom you voted, or to which god you choose to pray. Some of the most controversial matters humankind wastes our time fighting about are rendered meaningless in the face of a disease like cancer.
Four months at a time: living between brain scans
I feel bad blogging about fear and freak outs because it makes me sound like I get down on myself. This isn't true. I just happen to own a space on the Internet where I am allowed to tell the world that living with a slow-growing brain cancer can be scary sometimes.
Mark Miller
There's this guy I met at the UC Davis brain tumor support group, Mark Miller. He was there to make a presentation on managing health with technology – and Mark had brain cancer too.