Friday 29th August 2014,
The Liz Army

Browsing the "Brain Tumor Advocacy" Category

Tokyo as seen from the Tokyo Tower on a misty day. May 2014

Epic adventure awaits

Guess what? I just got back to my “normal” life (with brain cancer), after enjoying a four week vacation (in which I still had brain cancer). Before the vacation Brett and I were met with a variety of reactions from [...]

June 3, 2014 Brain Tumor Advocacy, Surviving
964745_577739972258190_245606727_o

Brain tumor awareness: you are doing it wrong

As a volunteer advocate with the National Brain Tumor Society I am often asked how people can help “spread awareness” about brain tumors. My answer is simple: become an advocate. According to Merriam Webster, advocates “argue for or support causes or [...]

November 10, 2013 Brain Tumor Advocacy
The gray ribbon. Lacking in inspiration.

Zero shades of gray: Who’s to blame for lack of brain cancer awareness? (CureToday.com)

The following is a post I wrote for the CureToday.com blog. See the original post here. As of 2013, nearly 700,000 Americans are living with a primary brain tumor. One of those 700,000 … is me. Unfortunately for us, brain [...]

October 14, 2013 Brain Tumor Advocacy
Photo by @CraigClarke on Instagram at http://instagram.com/p/d7NokVHvAh

Open thread: What does “supporting a cure” look like to you?

Recently a woman posted a comment to one of my blog posts expressing her frustration with business as usual when it comes to brain tumor treatment. She said: I want to start supporting a cure, and am very interested to [...]

September 18, 2013 Brain Tumor Advocacy
Community Leadership award

What would you say to the most influential people in the brain tumor community?

If you had 5-7 minutes to talk in front of some of the most influential people in the brain tumor community, what would you say? On October 3 I am receiving the Community Leadership award from the National Brain Tumor [...]

September 16, 2013 Brain Tumor Advocacy, Surviving
David gets Goliath

David gets Goliath: fighting brain cancer at Duke University

In 2012 I met a guy named Dave on a bus ride to Capitol Hill. We were brought together by the National Brain Tumor Society (NBTS) and had the same mission: lobby Congress about funding for brain tumor research. (We [...]

June 10, 2013 Brain Tumor Advocacy, In Treatment
In this photo? Three survivors, one window, and one BFF. All from California, and all kicking ass in Washington, DC.

Top 10 reasons I am a brain tumor advocate

This week I joined with hundreds of my fellow brain tumor advocates from around the country in Washington, DC, to attend the annual “Head to the Hill” lobby day organized by the National Brain Tumor Society. This is the second [...]

May 8, 2013 Brain Tumor Advocacy
Liz with deadlift bar

Students needed: specializing in the field of brain tumors

Coincidence? I think not! (But it probably is.) Since joining a new gym in mid-July I met a woman who lost her mom to a glioblastoma, a young man with a oglioastrocytoma who recently finished Temodar, and the woman who [...]

November 16, 2012 Brain Tumor Advocacy, Surviving
Zombies for Brain Cancer

Save the zombie food supply: support brain tumor research

I made this graphic a few weeks ago after attending the National Brain Tumor Society’s annual summit. I was inspired and excited about increasing brain tumor awareness and getting more people to take action. But honestly, if you don’t know [...]

October 27, 2012 Brain Tumor Advocacy
Ask me about brain cancer.

Questions submitted for the 2012 National Brain Tumor Society Summit

Before I left for the National Brain Tumor Society’s annual summit I asked The Liz Army blog readers if you had questions you would like me to ask doctors and health care professionals I would presumably meet at the event. [...]

October 21, 2012 Brain Tumor Advocacy
Boston-Red-Sox-logo

What do you want me to learn at the National Brain Tumor Society Summit?

NOTE: I am no longer accepting questions to bring to the NBTS Summit. Later this week I am attending the National Brain Tumor Society’s (NBTS) annual summit in Boston, MA. According to the website, the Summit brings together “Patients and [...]

October 8, 2012 Brain Tumor Advocacy, Surviving
20120509-142303.jpg

Lobbying with my emotions: brain tumor advocacy is conjuring up all kinds of dirt

A typical young adult cancer experience So there I was, lobbying members of Congress on the importance of brain tumor research, funding, and parity for oral forms of chemotherapy, when suddenly I got emotional. I didn’t think it would happen [...]

May 9, 2012 Brain Tumor Advocacy, Surviving