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Sunday 28th August 2016,
The Liz Army

Browsing the "Surviving" Category

The Open Patient: Healing Through Sharing

Watch The Open Patient documentary

A few months back I mentioned I would appear in a short documentary called The Open Patient: Healing Through Sharing produced by RedHat. The 15-minute documentary is out now and you can watch it for free on the Internet. I [...]

July 24, 2016 Surviving

Celebrating Cancer Hashtag Communities and a Moonshot (week of June 27-July 4, 2016)

This coming week, the online cancer hashtag communities will be celebrating. Why, you ask? We have two good reasons. The Cancer Moonshot Summit happens Wednesday, June 29, 2016, in Washington, D.C. and in satellite locations all over the United States (see [...]

June 26, 2016 Surviving
Enthusiasm: Me photobombing sweaty, hard working kids digging in a future garden at a high school. I was also working hard that day.

Defining enthusiasm

When I was little, the things my dad said meant something. I may have applied more meaning to his words because the times when I saw or spoke to him were few and far between. One thing he said in [...]

May 21, 2016 Surviving
Halls of the hospitals

Hacking the hospital death

Names have been removed from this post to respect the family of the deceased. Last Thursday I lost a friend and mentor. J was a brilliant journalist and communicator, and a fantastic father. I am lucky he was part of my life [...]

April 30, 2016 Surviving
Open Source trailer

Meta Open Source: Open sourcing my blog post about “I am the open source patient”

A little over one year ago I wrote a blog post declaring that, “I am the open source patient.” Little did I know a few months later I would be contacted by RedHat–a mega distributor of Linux-based services… and they were working [...]

April 27, 2016 Surviving
My dad's brain cancer.

Virtual visit with my dad’s neurosurgeon

Some people have been asking for a status update on my dad. He has been moved from receiving hospice care at my mom’s house and is now receiving hospice at a skilled nursing facility through the VA. (And he loves it [...]

March 26, 2016 Surviving

Dear everyone with an oligoastrocytoma: Your diagnosis just changed

In May of 2015 I was hanging out in a bar with David Arons, the now CEO of the National Brain Tumor Society. We were talking about brain tumor pathology and I was grilling him about grade II astrocytomas, more specifically, [...]

March 20, 2016 Surviving
New episodes of Marc Maron's WTF podcast air each Monday and Thursday.

A thank you letter to Marc Maron

Dear Mr. Maron, Like many Americans, I was first introduced to your podcast when I learned that you had interviewed President Barack Obama. For the first time ever I subscribed to a podcast through an app on my phone to hear [...]

March 6, 2016 Surviving
Liz and Charlie at Stanford Medicine X in 2015

#BTSM community survey

Do you have a brain tumor, or care for someone who has a brain tumor? Do you also use the Internet and social media to search for healthcare information or to find support? Please consider participating in the #BTSM community survey: http://goo.gl/forms/5j6vOByHTm. [...]

February 23, 2016 Brain Tumor Advocacy, Surviving
My at a few months old. My dad liked these slides.

A cranky primer on treatment for brain cancer, including a shoddy explanation of clinical trials

“I want to be in a clinical trial,” said my dad who, less than two months earlier, elected to forego all treatment options and was enrolled in hospice. A little over a month ago I blogged about my deadbeat dad [...]

December 31, 2015 Surviving
A map of the world

When your first thought is, “Let’s participate in research!”

Let’s go back to a few weeks ago when I first found out my dad had brain cancer. I was in an all day brainstorm session at work (no pun intended), when I saw that my mom was calling me. She [...]

December 3, 2015 Surviving
This is how old I was when my parents divorced.

So now my dad has brain cancer, too

Yes, you read that right. Seven years after my own diagnosis, my dad now also has a large mass in his brain that is characteristic of a highly malignant brain cancer–most likely a glioblastoma. By all means… Take a few [...]

November 21, 2015 Surviving