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Monday 30th May 2016,
The Liz Army

Browsing the "Surviving" Category

Enthusiasm: Me photobombing sweaty, hard working kids digging in a future garden at a high school. I was also working hard that day.

Defining enthusiasm

When I was little, the things my dad said meant something. I may have applied more meaning to his words because the times when I saw or spoke to him were few and far between. One thing he said in [...]

May 21, 2016 Surviving
Halls of the hospitals

Hacking the hospital death

Names have been removed from this post to respect the family of the deceased. Last Thursday I lost a friend and mentor. J was a brilliant journalist and communicator, and a fantastic father. I am lucky he was part of my life [...]

April 30, 2016 Surviving
Open Source trailer

Meta Open Source: Open sourcing my blog post about “I am the open source patient”

A little over one year ago I wrote a blog post declaring that, “I am the open source patient.” Little did I know a few months later I would be contacted by RedHat–a mega distributor of Linux-based services… and they were working [...]

April 27, 2016 Surviving
My dad's brain cancer.

Virtual visit with my dad’s neurosurgeon

Some people have been asking for a status update on my dad. He has been moved from receiving hospice care at my mom’s house and is now receiving hospice at a skilled nursing facility through the VA. (And he loves it [...]

March 26, 2016 Surviving
glioma_chart

Dear everyone with an oligoastrocytoma: Your diagnosis just changed

In May of 2015 I was hanging out in a bar with David Arons, the now CEO of the National Brain Tumor Society. We were talking about brain tumor pathology and I was grilling him about grade II astrocytomas, more specifically, [...]

March 20, 2016 Surviving
New episodes of Marc Maron's WTF podcast air each Monday and Thursday.

A thank you letter to Marc Maron

Dear Mr. Maron, Like many Americans, I was first introduced to your podcast when I learned that you had interviewed President Barack Obama. For the first time ever I subscribed to a podcast through an app on my phone to hear [...]

March 6, 2016 Surviving
Liz and Charlie at Stanford Medicine X in 2015

#BTSM community survey

Do you have a brain tumor, or care for someone who has a brain tumor? Do you also use the Internet and social media to search for healthcare information or to find support? Please consider participating in the #BTSM community survey: http://goo.gl/forms/5j6vOByHTm. [...]

February 23, 2016 Brain Tumor Advocacy, Surviving
My at a few months old. My dad liked these slides.

A cranky primer on treatment for brain cancer, including a shoddy explanation of clinical trials

“I want to be in a clinical trial,” said my dad who, less than two months earlier, elected to forego all treatment options and was enrolled in hospice. A little over a month ago I blogged about my deadbeat dad [...]

December 31, 2015 Surviving
A map of the world

When your first thought is, “Let’s participate in research!”

Let’s go back to a few weeks ago when I first found out my dad had brain cancer. I was in an all day brainstorm session at work (no pun intended), when I saw that my mom was calling me. She [...]

December 3, 2015 Surviving
This is how old I was when my parents divorced.

So now my dad has brain cancer, too

Yes, you read that right. Seven years after my own diagnosis, my dad now also has a large mass in his brain that is characteristic of a highly malignant brain cancer–most likely a glioblastoma. By all means… Take a few [...]

November 21, 2015 Surviving
David and Liz in Washington, D.C., a few months before their interview with the StoryCorps app.

David, Part 2: The best thing I ever did in my life

A few hours after I learned David had started hospice I woke up in the middle of the night with an incredible urge: I had to see him. I didn’t want to be a burden, and I felt like I [...]

October 21, 2015 Surviving
David with his late wife, Kirsten.

David, Part 1B: Kindred souls

Spoiler alert: David passed away about an hour ago. I thought I had time to type up “David, Part 2″ before he died (in response to Part 1), but time does not wait for a blog post. I am ransacking all of my [...]

October 21, 2015 Surviving