Top 10 reasons I am a brain tumor advocate
This week I joined with hundreds of my fellow brain tumor advocates from around the country in Washington, DC, to attend the annual “Head to the Hill” lobby day organized by the National Brain Tumor Society. This is the second year in a row I’ve traveled to our nation’s capital to educate our members of...
Students needed: specializing in the field of brain tumors
Coincidence? I think not! (But it probably is.) Since joining a new gym in mid-July I met a woman who lost her mom to a glioblastoma, a young man with a oglioastrocytoma who recently finished Temodar, and the woman who is the scheduler for the doctor who performed my shoulder surgery! Coincidence? Probably. And this,...
Save the zombie food supply: support brain tumor research
I made this graphic a few weeks ago after attending the National Brain Tumor Society’s annual summit. I was inspired and excited about increasing brain tumor awareness and getting more people to take action. But honestly, if you don’t know me or one of the other 650,000+ people in the United States living with a...
Questions submitted for the 2012 National Brain Tumor Society Summit
Before I left for the National Brain Tumor Society’s annual summit I asked The Liz Army blog readers if you had questions you would like me to ask doctors and health care professionals I would presumably meet at the event. Keep in mind, I had never attended an NBTS summit and I did not know...
What do you want me to learn at the National Brain Tumor Society Summit?
NOTE: I am no longer accepting questions to bring to the NBTS Summit. Later this week I am attending the National Brain Tumor Society’s (NBTS) annual summit in Boston, MA. According to the website, the Summit brings together “Patients and families, advocates, researchers, clinicians, and government and industry professionals who will connect, share the latest...
Brain tumor advocacy in full swing: it’s time to educate Congress
Apologies: This was typed on my iPad and I didn’t have time to do much editing. I’m in Washington DC today to do something pretty amazing. I’m working with the National Brain Tumor Society to lobby Congress for two things: Lobby our elected leaders to focus on brain tumor research Ask for “chemo parity”...
Screw “watch and wait”… keep fighting
What to do while you’re waiting for your cancer to come back It sounds pessimistic, but let’s be real: even when you are moving on with your life and enjoying survivorship or remission, you still worry about cancer from time to time. Now that I am done with treatment I feel somewhat powerless. Brain surgeries...
Join my team for the Bay Area Brain Tumor Walk
Dear friends, family and people we don’t know: Are you ready to join a crew so fierce that brain cancer cowers at the mere mention of our name? Team Glioma Girls invites you to join us for the Bay Area Brain Tumor Walk in Golden Gate Park in San Francisco, California, on Saturday, May 5,...
The girl with the octopus tattoo
In case anyone is wondering about the progress of my brain cancer-inspired tattoo, it is going along swimmingly. The photo to the right was taken after my most recent sitting–there have been eight in total, and I have about 1-2 sessions left. In other news, I talked with the director of public policy for the...
My head is in the game
Brain tumor patients, survivors, caregivers and friends–listen up! Get Your Head in the Game is the movement we’ve all been looking for… a way we can spread awareness about a malady invading our lives–and heads. Through knowledge and action, the GYHITG folks are educating the nation about brain tumors, how they impact our lives and...
