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Monday 30th November 2015,
The Liz Army

Browsing the "brain cancer" Tag

This is how old I was when my parents divorced.

So now my dad has brain cancer, too

Yes, you read that right. Seven years after my own diagnosis, my dad now also has a large mass in his brain that is characteristic of a highly malignant brain cancer–most likely a glioblastoma. By all means… Take a few [...]

November 21, 2015 Surviving
David and Liz in Washington, D.C., a few months before their interview with the StoryCorps app.

David, Part 2: The best thing I ever did in my life

A few hours after I learned David had started hospice I woke up in the middle of the night with an incredible urge: I had to see him. I didn’t want to be a burden, and I felt like I [...]

October 21, 2015 Surviving
Brett and I at the beginning of this rollarcoaster

Tied for worst feelings ever

[PHOTO: Brett and I in 2008, six weeks after diagnosis.] Tied for worst feelings ever: People assuming you beat cancer when you haven’t. Reminding people you still have cancer and making them cry. Over the past week the following things [...]

January 18, 2015 Surviving

Seizure drugs: Where is our jetpack?

I’ve been on anti-seizure drugs for nearly six years. It only took the first two years to try out seven different medications that would ultimately land me on my current recipe of 3,000 mg of Keppra and 200 mg of [...]

July 22, 2014 Surviving
Getting some Thai food on my 30th birthday

Feeling the love

July is just around the corner and that means it will be my birthday soon. I will be 35, and I say that with great pride because getting older in this uncertain world (i.e., living with a gemistocytic astrocytoma) means [...]

June 21, 2014 Surviving
Liz checking out an art installation at the Crocker Art Museum in Sacramento

What I wish I knew before my brain was diagnosed with cancer

I wrote this as a guest blog post for my friend Amanda. This will be part of her #52blog series, where each week a new blogger completes this phrase: What I wish I knew before my ______ was diagnosed with cancer. It can [...]

January 18, 2014 Surviving
Tree branch by @alnational on Instagram.

This is not a death sentence

To those of you diagnosed with a brain tumor–malignant or otherwise–for the love of god (or whatever you believe in), don’t tell yourself the diagnosis is a death sentence. Be as negative as you want. Dread the biopsy. Freak out [...]

January 13, 2014 Surviving
Me jumping for joy at being asked to host TEDxWomen in Sacramento.

Special certificate: brain cancer

In 2013 I celebrated my five-year cancer-versary (anniversary of the date one is diagnosed with cancer). In early 2014 I will celebrate the five-year anniversary of my second craniotomy. In this medical world–this crazy, crazy, world–professional patients like me celebrate [...]

December 18, 2013 Surviving
TEDx Sacramento talk

Redefining the support group: my TEDx talk

Here’s a little something different: instead of a blog post, watch this video of me talking about my brain cancer experience. The moral of the story is you. Yes, you. This was recorded on April 18, 2013 as part of [...]

June 8, 2013 In Treatment, Newly Diagnosed, Surviving
#BTSM tweet chat

How to participate in the #btsm tweet chat

The “Brain Tumor Social Media” Twitter community successfully organized its first “tweet chat” last Sunday, 7 PST/10 EST. The chat was so successful that Cure Today’s Elizabeth Whittington wrote about it just a few days later on their blog. The [...]

May 26, 2013 Surviving
In this photo? Three survivors, one window, and one BFF. All from California, and all kicking ass in Washington, DC.

Top 10 reasons I am a brain tumor advocate

This week I joined with hundreds of my fellow brain tumor advocates from around the country in Washington, DC, to attend the annual “Head to the Hill” lobby day organized by the National Brain Tumor Society. This is the second [...]

May 8, 2013 Brain Tumor Advocacy
book club

Support groups are not for everyone

I’ve been in a state of brain cancer reflection this week as I prepare for two upcoming presentations related to patient engagement through digital media. (I know, I’m a nerd.) Then I remembered this day… The bus About four weeks [...]

April 7, 2013 In Treatment, Newly Diagnosed, Surviving