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Sunday 29th November 2015,
The Liz Army

Browsing the "National Brain Tumor Society" Tag

Brain tumor advocates in Washington, D.C. David is at 12 o'clock, I'm rocking the shaved head at 9 o'clock.

David, Part 1: When your brain tumor friend starts hospice

It has taken me a few weeks to process an experience which might turn out to be one of the best things I have ever done in my life. I can’t fit this all into one post, so here is [...]

October 13, 2015 Surviving
At the photo booth for the Portland Brain Tumor Walk

Permission to live

I am tired of fighting. Cancer nomenclature is full of words depicting an epic battle. We talk about the “war on cancer.” A person in treatment is “fighting cancer.” If you live, you are a “cancer survivor.” And if you [...]

September 13, 2015 Brain Tumor Advocacy, Surviving

My world is on fire

So many things have happened. Emily died. I lobbied for the oral chemo parity bill in Washington, DC, with awesome advocates from California. I visited my Congressman’s office (just 10 miles from my house) in August. No bill has passed. [...]

November 13, 2014 Brain Tumor Advocacy
Emily Morrison, Photo credit: Erin Witkowski

Emily Morrison

I’m still not ready to talk about Emily Morrison. But now is as good a time as any. Emily died in March, nearly three years after being diagnosed with a rare type of brain cancer. I met Emily when I [...]

September 6, 2014 Brain Tumor Advocacy, Surviving
Tokyo as seen from the Tokyo Tower on a misty day. May 2014

Epic adventure awaits

Guess what? I just got back to my “normal” life (with brain cancer), after enjoying a four week vacation (in which I still had brain cancer). Before the vacation Brett and I were met with a variety of reactions from [...]

June 3, 2014 Brain Tumor Advocacy, Surviving

Brain tumor awareness: you are doing it wrong

As a volunteer advocate with the National Brain Tumor Society I am often asked how people can help “spread awareness” about brain tumors. My answer is simple: become an advocate. According to Merriam Webster, advocates “argue for or support causes or [...]

November 10, 2013 Brain Tumor Advocacy
Photo by @CraigClarke on Instagram at http://instagram.com/p/d7NokVHvAh

Open thread: What does “supporting a cure” look like to you?

Recently a woman posted a comment to one of my blog posts expressing her frustration with business as usual when it comes to brain tumor treatment. She said: I want to start supporting a cure, and am very interested to [...]

September 18, 2013 Brain Tumor Advocacy
Community Leadership award

What would you say to the most influential people in the brain tumor community?

If you had 5-7 minutes to talk in front of some of the most influential people in the brain tumor community, what would you say? On October 3 I am receiving the Community Leadership award from the National Brain Tumor [...]

September 16, 2013 Brain Tumor Advocacy, Surviving
In this photo? Three survivors, one window, and one BFF. All from California, and all kicking ass in Washington, DC.

Top 10 reasons I am a brain tumor advocate

This week I joined with hundreds of my fellow brain tumor advocates from around the country in Washington, DC, to attend the annual “Head to the Hill” lobby day organized by the National Brain Tumor Society. This is the second [...]

May 8, 2013 Brain Tumor Advocacy
Ask me about brain cancer.

Questions submitted for the 2012 National Brain Tumor Society Summit

Before I left for the National Brain Tumor Society’s annual summit I asked The Liz Army blog readers if you had questions you would like me to ask doctors and health care professionals I would presumably meet at the event. [...]

October 21, 2012 Brain Tumor Advocacy

What do you want me to learn at the National Brain Tumor Society Summit?

NOTE: I am no longer accepting questions to bring to the NBTS Summit. Later this week I am attending the National Brain Tumor Society’s (NBTS) annual summit in Boston, MA. According to the website, the Summit brings together “Patients and [...]

October 8, 2012 Brain Tumor Advocacy, Surviving

Lobbying with my emotions: brain tumor advocacy is conjuring up all kinds of dirt

A typical young adult cancer experience So there I was, lobbying members of Congress on the importance of brain tumor research, funding, and parity for oral forms of chemotherapy, when suddenly I got emotional. I didn’t think it would happen [...]

May 9, 2012 Brain Tumor Advocacy, Surviving