Wednesday 23rd July 2014,
The Liz Army

Browsing the "seizures" Tag

Jetpack

Seizure drugs: Where is our jetpack?

I’ve been on anti-seizure drugs for nearly six years. It only took the first two years to try out seven different medications that would ultimately land me on my current recipe of 3,000 mg of Keppra and 200 mg of [...]

July 22, 2014 Surviving
book club

Support groups are not for everyone

I’ve been in a state of brain cancer reflection this week as I prepare for two upcoming presentations related to patient engagement through digital media. (I know, I’m a nerd.) Then I remembered this day… The bus About four weeks [...]

April 7, 2013 In Treatment, Newly Diagnosed, Surviving
neuropathy

Something is waking me up at night

I’ve had nothing medical to say for a long time, and now… this. Over the past two months I’ve been woken up in the middle of the night by a weird sensation. It feels like I bumped my elbow super [...]

December 9, 2012 Surviving
Ask me about brain cancer.

Questions submitted for the 2012 National Brain Tumor Society Summit

Before I left for the National Brain Tumor Society’s annual summit I asked The Liz Army blog readers if you had questions you would like me to ask doctors and health care professionals I would presumably meet at the event. [...]

October 21, 2012 Brain Tumor Advocacy
Oops

Oops

I short-changed my Keppra dosing this week by mistake. I’m supposed to have 1,500mg in the morning and 2,000mg in the evening, but I must have filled up my Old Man Pill Case wrong. All this week I’ve been taking [...]

February 26, 2011 In Treatment
The radiologist on crack

The radiologist on crack

Long story short: I had an MRI on Friday. The radiologist said it looked like there was tumor growth compared with my last MRI (from November 2010). My neuro-oncologist and Super Awesome Nurse disagreed with the radiologist and think he’s [...]

February 7, 2011 In Treatment
A recent interaction between the neurologist and me

A recent interaction between the neurologist and me

Dr. G.P., Twice this week I experienced an odd sensation. I don’t think I was having a seizure because I didn’t have an aura and I didn’t have any Jacksonian-march sensations characteristic of all other seizures I’ve had. What happens [...]

January 27, 2011 In Treatment
My hands are on fire

My hands are on fire

The tremors. The twitches. The random eye movements. It’s enough to drive you crazy. At least I know why it happens. [...]

December 13, 2010 In Treatment
van

It’s just one week. Right?

I start cycle 14 of Temodar tonight. My red blood cell count is a little low, which makes me “a little anemic,” but it is not enough to be concerned about, says Super Awesome Nurse. I’ve never been told I [...]

April 26, 2010 In Treatment
First chemo of the new year/decade

First chemo of the new year/decade

My 11th month of Temodar (chemo) starts tonight. Last year I re-learned how to walk after brain surgery. Go me! Last year I got my driver’s license back after being seizure free for more than six months. Go me! Last [...]

January 5, 2010 In Treatment
Fear of seizures

Fear of seizures

I need to stop living like it’s 2008 and I could have a seizure any time, any where. I am sick of the anxiety. I want to be normal again.  [...]

October 20, 2009 In Treatment
I love insurance

Viva la medical insurance x 1 billion

The note says, “Your drug plan saved you $836.95.” This is for a monthly supply of just one anti-epileptic medication. [...]

September 27, 2009 In Treatment