Talks & Presentations
Oral Ignite! at Stanford Medicine X
Patient advocate Liz Salmi discusses her experiences living with a brain tumor diagnosis and how her family history with the disease has informed her decisions. This talk is preceded by a film on Liz's efforts to share information.
"Redefining the Support Group" at TEDxSacramento
Liz began blogging about her brain cancer experience immediately after diagnosis. TheLizArmy.com now receives more than 30,000 visitors each year, and Liz is using social media to connect with the brain tumor community around the world.
The Open Patient: Healing Through Sharing
"The Open Patient" tells the story of two brain cancer patients who, by accessing and sharing their medical data, are turning their crises into a movement for open healthcare data standards.
Mind Over Matter promo
Brain cancer didn’t stop her. Neither did two surgeries. Or a system that made accessing her own healthcare data an uphill battle. Liz Salmi's moving Open Source Story is featured in the documentary, "The Open Patient."
Interviews & Panels
Patient Perspectives on Patient-Driven Research
Panel discussion at the pSCANNER Annual Meeting in San Diego. pSCANNER is one of 13 clinical data research networks funded by PCORI.
OpenNotes improves healthcare through data access
Panel discussion at RedHat Summit in San Francisco, CA. OpenNotes helps patients recall conversations with their doctors and keeps them engaged.