Sunday 19th February 2017,
The Liz Army

Browsing the "Brain Tumor Advocacy" Category

Liz and Charlie at Stanford Medicine X in 2015

#BTSM community survey

Do you have a brain tumor, or care for someone who has a brain tumor? Do you also use the Internet and social media to search for healthcare information or to find support? Please consider participating in the #BTSM community survey: [...]

February 23, 2016 Brain Tumor Advocacy, Surviving
At the photo booth for the Portland Brain Tumor Walk

Permission to live

I am tired of fighting. Cancer nomenclature is full of words depicting an epic battle. We talk about the “war on cancer.” A person in treatment is “fighting cancer.” If you live, you are a “cancer survivor.” And if you [...]

September 13, 2015 Brain Tumor Advocacy, Surviving

My world is on fire

So many things have happened. Emily died. I lobbied for the oral chemo parity bill in Washington, DC, with awesome advocates from California. I visited my Congressman’s office (just 10 miles from my house) in August. No bill has passed. [...]

November 13, 2014 Brain Tumor Advocacy
Emily Morrison, Photo credit: Erin Witkowski

Emily Morrison

I’m still not ready to talk about Emily Morrison. But now is as good a time as any. Emily died in March, nearly three years after being diagnosed with a rare type of brain cancer. I met Emily when I [...]

September 6, 2014 Brain Tumor Advocacy, Surviving

Epic adventure awaits

Guess what? I just got back to my “normal” life (with brain cancer), after enjoying a four week vacation (in which I still had brain cancer). Before the vacation Brett and I were met with a variety of reactions from [...]

June 3, 2014 Brain Tumor Advocacy, Surviving

Brain tumor awareness: you are doing it wrong

As a volunteer advocate with the National Brain Tumor Society I am often asked how people can help “spread awareness” about brain tumors. My answer is simple: become an advocate. According to Merriam Webster, advocates “argue for or support causes or [...]

November 10, 2013 Brain Tumor Advocacy
The gray ribbon. Lacking in inspiration.

Zero shades of gray: Who’s to blame for lack of brain cancer awareness? (

The following is a post I wrote for the blog. See the original post here. As of 2013, nearly 700,000 Americans are living with a primary brain tumor. One of those 700,000 … is me. Unfortunately for us, brain [...]

October 14, 2013 Brain Tumor Advocacy

Open thread: What does “supporting a cure” look like to you?

Recently a woman posted a comment to one of my blog posts expressing her frustration with business as usual when it comes to brain tumor treatment. She said: I want to start supporting a cure, and am very interested to [...]

September 18, 2013 Brain Tumor Advocacy
Community Leadership award

What would you say to the most influential people in the brain tumor community?

If you had 5-7 minutes to talk in front of some of the most influential people in the brain tumor community, what would you say? On October 3 I am receiving the Community Leadership award from the National Brain Tumor [...]

September 16, 2013 Brain Tumor Advocacy, Surviving

David gets Goliath: fighting brain cancer at Duke University

In 2012 I met a guy named Dave on a bus ride to Capitol Hill. We were brought together by the National Brain Tumor Society (NBTS) and had the same mission: lobby Congress about funding for brain tumor research. (We [...]

June 10, 2013 Brain Tumor Advocacy, In Treatment

Top 10 reasons I am a brain tumor advocate

This week I joined with hundreds of my fellow brain tumor advocates from around the country in Washington, DC, to attend the annual “Head to the Hill” lobby day organized by the National Brain Tumor Society. This is the second [...]

May 8, 2013 Brain Tumor Advocacy
Liz with deadlift bar

Students needed: specializing in the field of brain tumors

Coincidence? I think not! (But it probably is.) Since joining a new gym in mid-July I met a woman who lost her mom to a glioblastoma, a young man with a oglioastrocytoma who recently finished Temodar, and the woman who [...]

November 16, 2012 Brain Tumor Advocacy, Surviving