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Patient Blog

My at a few months old. My dad liked these slides.

December 31, 2015

A cranky primer on treatment for brain cancer, including a shoddy explanation of clinical trials


by Liz

A map of the world

December 3, 2015

When your first thought is, “Let’s participate in research!”


by Liz

This is how old I was when my parents divorced.

November 21, 2015

So now my dad has brain cancer, too


by Liz

David and Liz in Washington, D.C., a few months before their interview with the StoryCorps app.

October 21, 2015

David, Part 2: The best thing I ever did in my life


by Liz

David with his late wife, Kirsten.

October 21, 2015

David, Part 1B: Kindred souls


by Liz

Brain tumor advocates in Washington, D.C. David is at 12 o'clock, I'm rocking the shaved head at 9 o'clock.

October 13, 2015

David, Part 1: When your brain tumor friend starts hospice


by Liz

At the photo booth for the Portland Brain Tumor Walk

September 13, 2015

Permission to live


by Liz

June 13, 2015

Everything you thought you knew about your brain cancer diagnosis is going to change


by Liz

May 31, 2015

The future is a horribly scary, uncertain place


by Liz

Me, in a two-person kayak with Brett, off the coast of Hawai'i. We were on an ocean kayaking tour. It was pretty low-key and we saw sleeping dolphins! I was still on Temodar when we did this.

April 18, 2015

Paddling beyond my diagnosis: First Descents


by Liz

Me in weightlifting shoes.

April 11, 2015

Expressing survivorship as an athlete


by Liz

My brain scan.

February 16, 2015

I am the open source patient


by Liz

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ABOUT LIZ

Hi, my name is Liz, and I am a curious person-turned citizen informaticist, who turned my brain cancer diagnosis into an open source chronicle of the patient experience. Learn more about me.

LATEST POSTS

  • Major life update: From patient to patient-researcher July 13, 2019
  • The eulogy for my dad February 18, 2019
  • Breaking down the barriers to clinical trials December 1, 2018

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