Legit controlling my body with my thoughts

Photo: I used a dry erase marker on a mirror and drew myself. Try it out!

Photo: I used a dry erase marker on a mirror and drew myself. Try it out!

Over my life I've developed a mantra for whenever I have to do something unpleasant. I tell myself:

"You will do this right now. It will suck for right now. But when it is over you will never have to do it again."

I developed this mantra when I got my first tattoo. I went to the tattoo place by myself and as soon as the needle went into my skin I felt lightheaded and my blood sugar dropped. The tattoo artist gave me candy to put sugar back into my system (and it helped) but I also felt a lot of pain. All I could do was tell myself over and over again that as soon as I was done getting me the tattoo I'd never have to get this tattoo again. It would be over and I would have the tattoo I wanted. 

This method of thinking has worked for all my tattoos.

When the time came time for my first brain surgery I told myself the same thing. I literally used self-talk and said,

"Remember when you got those tattoos and they hurt real bad? This is like that... but you will be unconscious and won't even know you're hurting! And when it is over you will never have to do it again."

And this helped me.

Then a funny thing happened... I found out I had to have a second brain surgery! So the second time around I told myself,

"It's not your fault you have to do this again, but the same principle applies: when it is over you will never have to do it again."

And now here I am two years after that second brain surgery and I am doing something new-ish and unpleasant: exercising.

The hardest part for me is running because I have sensory loss on the right side of my body and when my feet go back and forth on the ground they feel different and I feel lopsided. It feels like I am running with one shoe off and one shoe on. Or like I am walking with one foot on the street and the other on the curb.

When I run by body begins to feel odd and nervy, and I get tired and discouraged. And the whole "you'll never have to do it again" mantra doesn't apply because I will have to run again.

Except I found a way to trick myself. I tell myself,

"You have to run right now. It will suck for right now. But when it is over you will never have to run again today."

Us brain-peeps have to remember that there is nothing wrong with our bodies. When you think something feels wrong, that's your brain sending signals to you.

When I am running and I feel lopsided... my body isn't really lopsided. That's just a damaged sensory strip in my parietal lobe making me feel lopsided.

I have to remind myself of that throughout my entire workout.

When I can control my body with thoughts I am at my most powerful. I wouldn't have realized this if it wasn't for brain cancer.

Liz Salmi

Liz Salmi is Communications & Patient Initiatives Director for OpenNotes at Beth Israel Deaconess Medical Center in Boston. Over the last 15 years Liz has been: a research subject; an advisor in patient stakeholder groups; a leader in “patient engagement” research initiatives; and an innovator, educator and investigator in national educational and research projects. Today her work focuses on involving patients and care partners in the co-design of research and research dissemination. It is rumored Liz was the drummer in a punk rock band.

https://thelizarmy.com
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Parietal lobe damage: One side feels different from the other

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