Patient Advocate CV

This CV is specific to my work as a patient advocate. A full professional CV is available upon request.

Current Projects

Patient Advisory Panel, The BMJ, 2017

Consultant, OpenNotes, Beth Israel Deaconess Medical Center, 2016-present

Patient Reviewer, Patient-Centered Outcomes Research Institute (PCORI), 2016-present

Member, Baylor College of Medicine, Gliogene Patient/Family Advocacy Committee, 2016-present

Patient Reviewer, The BMJ, 2015-present

Co-Founder & Community Organizer, #BTSM Tweet Chat on brain tumors and brain cancer, 2013-present

Member, National Brain Tumor Society Medical Advisory Board, 2012-present

Past Projects

Fellow, Salzburg Global Seminar, Salzburg, Austria, 2017

Organizer, Health 2.0 Sacramento, 2014-2016

State Lead Advocate, National Brain Tumor Society, 2012-2015

Member, UC Davis Cancer Center Adolescent & Young Adult Cancer Advisory Board, 2011-2013

Mentor Angel, Imerman Angels, 2009-2015

Conferences & Symposia


Invited Presentations

Leica Biosystems Annual Meeting, Orlando, FL, 2/16/2017 (patient experience during diagnosis)
Breaking the Two-Way Mirror in Healthcare, PechaKucha, Sacramento, CA, 2/9/2017
Patient Perspectives on Patient-Driven Research, Patient-Centered Scalable National Network for Effectiveness (pSCANNER) Annual Meeting, La Jolla, CA, 10/13/2016
Oral IGNITE! Talk, Stanford Medicine X, Stanford, CA 9/17/2016
Leveraging Social Media Tools to Advocate for Your Program, National POLST Paradigm Conference, Chicago, IL, 2/5/2016
Real Talk: Advance Care Planning for Young Adults, UC Davis Comprehensive Cancer Center, Sacramento, CA, 11/7/2015
Exploring New Technologies to Communicate With Seriously-Ill Patients, Collabria Care Advances in Palliative Care Conference, Napa, CA, 10/29/2015
Girls in STEM, Sierra College, Rocklin, CA, 10/16/14
Redefining the Support Group, TEDxSacramento, Sacramento, CA, 4/18/2013
Transforming Healthcare Through Digital Patient Engagement, Healthcare Information Management Systems Society (HIMMS) Northern California Chapter, Vallejo, CA, 4/11/2013
Healthcare and Social Media, Social Media Club Sacramento, Sacramento, CA, 11/14/2012
Meetings & Conferences Attended as Patient Advocate

Salzburg Global Seminar Session 553, March 2017
Pushing Past Cancer, UC Davis Comprehensive Cancer Center, 11/8/14
National Brain Tumor Society Annual Meeting, 10/9/14
National Brain Tumor Society Annual Meeting, 10/3/13
National Brain Tumor Society Annual Meeting, 10/11/12
Cancer Con, Stupid Cancer, 3/31/12-4/1/12

Message me through LinkedIn for interview, speaking or consulting inquiries.

Honors & Awards

Comstock's 10 Young Professionals on Our Radar, 2015

National Brain Tumor Society
Community Leadership Award, 2013

Sacramento Business Journal 40 Under 40, 2012

Professional Memberships

Society for Participatory Medicine
2006-present

Education & Training

e-Patient Delegate: Precision Medicine & Research
Stanford Medicine X, Stanford, CA, 2017

Front Line Scholar
TEDMED, Palm Springs, CA, 2016

e-Patient Scholar: Speaker
Stanford Medicine X, Stanford, CA, 2016

Organizing with New Media
New Organizing Institute, Washington, D.C., 2011

Graphic Communication, A.S.
Sacramento City College, Sacramento, CA, 2006

Public Policy & Legislative Advocacy

Advocate and trainer, National Brain Tumor Society, Washington, D.C., 5/8/17

California Lead Advocate, National Brain Tumor Society, Washington, D.C., 5/5/15

California Lead Advocate, National Brain Tumor Society, Washington, D.C., 5/6/14

Personal testimony, California Assembly Bill 219 Oral Chemotherapy Parity Law, California State Senate Health Committee Meeting, Sacramento, CA, 6/26/13

California Lead Advocate, National Brain Tumor Society, Washington, D.C., 5/6/13

Patient advocate, National Brain Tumor Society, Washington, D.C., 5/6/12