Patient Advocate CV

This CV is specific to my work as a patient advocate. A full professional CV is available upon request.

Current Positions & Leadership

Senior Strategist, Outreach & Communications, OpenNotes, Beth Israel Deaconess Medical Center, 2017-present

Board of Directors, National Brain Tumor Society, 2017-present

Project Lead, Brain Cancer Quality of Life Collaborative, Patient-Centered Outcomes Research Institute (PCORI), 2017

Member, Working Group on Technologies to Enhance Person, Family, and Community Activation, National Academies of Medicine (NAM), 2018

Patient Advisory Panel, The BMJ, 2017-present

Patient Reviewer, Patient-Centered Outcomes Research Institute (PCORI), 2016-present

Co-Founder & Community Organizer, #BTSM Tweet Chat on brain tumors and brain cancer, 2013-present

Past Projects

Fellow, Salzburg Global Seminar, Salzburg, Austria, 2017

Member, Baylor College of Medicine, Gliogene Patient/Family Advocacy Committee, 2016

Organizer, Health 2.0 Sacramento, 2014-2016

State Lead Advocate, National Brain Tumor Society, 2012-2015

Member, UC Davis Cancer Center Adolescent & Young Adult Cancer Advisory Board, 2011-2013

Mentor Angel, Imerman Angels, 2009-2015


Measure Me, Don’t Judge Me: Patients as Objective Contributors to Performance Status Measurement
Liz Salmi and Jeremy L. Warner
JCO Clinical Cancer Informatics 2018 :2, 1-4

Patient-Clinician Communication Is a Joint Creation: Working Together Toward Well-Being, Timothy Gilligan, Liz Salmi, and Andrea Enzinger, American Society of Clinical Oncology Educational Book 2018 :38, 532-539

Tomorrow’s patients will demand greater transparency and openness, Liz Salmi, The BMJ Opinion 2017

Conferences & Symposia

Invited Presentations

Patient Perspectives on Clinical Trials, Society for Neuro-Oncology education day, New Orleans, LA, 11/15/18
Citizen Science & Patient Voice in Research: An Informatics Perspective, American Medical Informatics Association education day, San Francisco, CA, 11/2/18
NCQA Quality Talks, Washington, D.C., 10/22/18
The Citizen Informatician, Health Record Banking Alliance, webinar, 7/12/18
Transparency in Patient Care, Minnesota eHealth Summit, Minnesota Department of Health, Brooklyn Center, MN, 6/14/18
Patient–Clinician Communication Is a Two-Way Street: Driving in Parallel Toward Well-Being (with Timothy D. Gilligan, MD, FASCO and Andrea Catherine Enzinger, MD), American Society for Clinical Oncology annual meeting, Chicago, IL, 6/4/18
OpenNotes: A key to patient engagement (with Amy Fellows, MPH), IHA Health Literacy Conference, Irvine, CA, 5/1/18
OpenNotes for Medical Education: Medical students partner with patients as note navigators (with Chethan Sarabu, MD), Stanford Medicine X | ED, Stanford, CA, 4/28/18
OpenNotes: The Patient Perspective, Kaiser Permanente Southern California, Los Angeles, CA, 4/24/18
OpenNotes: Breaking Barriers, Changing Culture, Engaging Patients (with Stephen O'Neill, BCD, JD)Patient Experience Conference, Chicago, IL, 4/16/18
Hot Topics in Research: Patients as Researchers, UC Davis Betty Irene School of Nursing, Sacramento, CA, 4/5/18
OpenNotes: Advancing Patient Safety and Patient Engagement, Hospital Quality Institute, webinar, 3/14/18
Grand Rounds: OpenNotes & Nervous Clinicians (with Tom Delbanco, MD), University of California San Diego School of Medicine, San Diego, CA, 2/28/18
OpenNotes: The Patient Perspective, We Can Do Better Conference,   Portland, OR, 1/24/18
The Patient Researcher, UC Davis, Sacramento, CA, 12/6/17
Precision Medicine & Brain Cancer, Stanford Medical School, Stanford, CA, 12/5/17
OpenNotes: The Patient Perspective, Hospital Quality Institute Annual Conference, Monterey, CA, 11/2/17
OpenNotes: A Patient Perspective, Health Insight’s Annual Quality Conference, West Jordan, UT, 11/1/17
Notes, Nervous Clinicians, and People Power 2.0, Society for Participatory Medicine Annual Conference, Boston, MA, 10/25/17
OpenNotes: The Patient Perspective, Institute for Patient- and Family-Centered Care, Washington, D.C., 10/20/17
Keynote: Health Data: A relationship, AMIA Annual Health Policy Invitational, Bethesda, MD, 9/27/17
Power to the People: Engaging Everyone in Advance Care Planning, Stanford Medicine X, Stanford, CA, 9/17/17
Death and Bereavement in the Digital Age
, Stanford Medicine X, Stanford, CA, 9/16/17
Patient experience during diagnosis, Leica Biosystems Annual Meeting, Orlando, FL, 2/16/2017
Breaking the Two-Way Mirror in Healthcare, PechaKucha, Sacramento, CA, 2/9/2017
Patient Perspectives on Patient-Driven Research, Patient-Centered Scalable National Network for Effectiveness (pSCANNER) Annual Meeting, La Jolla, CA, 10/13/2016
Oral IGNITE! Talk, Stanford Medicine X, Stanford, CA 9/17/2016
Leveraging Social Media Tools to Advocate for Your Program, National POLST Paradigm Conference, Chicago, IL, 2/5/2016
Real Talk: Advance Care Planning for Young Adults, UC Davis Comprehensive Cancer Center, Sacramento, CA, 11/7/2015
Exploring New Technologies to Communicate With Seriously-Ill Patients, Collabria Care Advances in Palliative Care Conference, Napa, CA, 10/29/2015
Girls in STEM, Sierra College, Rocklin, CA, 10/16/14
Redefining the Support Group, TEDxSacramento, Sacramento, CA, 4/18/2013
Transforming Healthcare Through Digital Patient Engagement, Healthcare Information Management Systems Society (HIMMS) Northern California Chapter, Vallejo, CA, 4/11/2013
Healthcare and Social Media, Social Media Club Sacramento, Sacramento, CA, 11/14/2012
Meetings & Conferences Attended as Patient Advocate

Winter Research Roundtable, National Brain Tumor Society, Washington, D.C., December 2017
Research Roundtable, National Brain Tumor Society, June 2017
Salzburg Global Seminar Session 553, March 2017
Pushing Past Cancer, UC Davis Comprehensive Cancer Center, 11/8/14
National Brain Tumor Society Annual Meeting, 10/9/14
National Brain Tumor Society Annual Meeting, 10/3/13
National Brain Tumor Society Annual Meeting, 10/11/12
Cancer Con, Stupid Cancer, 3/31/12-4/1/12

Message me through LinkedIn for inquiries.

Honors & Awards

Comstock's 10 Young Professionals on Our Radar, 2015

National Brain Tumor Society
Community Leadership Award, 2013

Sacramento Business Journal 40 Under 40, 2012

Professional Memberships

Society for Participatory Medicine

Education & Training

e-Patient Delegate
Stanford Medicine X  | ED, Stanford, CA, 2018

e-Patient Scholar: Precision Medicine & Research
Stanford Medicine X, Stanford, CA, 2017

Front Line Scholar
TEDMED, Palm Springs, CA, 2016

e-Patient Scholar
Stanford Medicine X, Stanford, CA, 2016

Organizing with New Media
New Organizing Institute, Washington, D.C., 2011

Graphic Communication, A.S.
Sacramento City College, Sacramento, CA, 2006

Public Policy & Legislative Advocacy

Advocate and trainer, National Brain Tumor Society, Washington, D.C., 5/8/17

California Lead Advocate, National Brain Tumor Society, Washington, D.C., 5/5/15

California Lead Advocate, National Brain Tumor Society, Washington, D.C., 5/6/14

Personal testimony, California Assembly Bill 219 Oral Chemotherapy Parity Law, California State Senate Health Committee Meeting, Sacramento, CA, 6/26/13

California Lead Advocate, National Brain Tumor Society, Washington, D.C., 5/6/13

Patient advocate, National Brain Tumor Society, Washington, D.C., 5/6/12