Still punk rock. New subject.

The BMJ, 2021

A major shift in patient power, and hospitals need to get ready

The 21st Century Cures Act gave U.S. patients free, immediate access to their complete health records online—a historic win for transparency after 25 years of advocacy. But the change came with real concerns, from learning bad news before talking to your doctor to data privacy risks, and hospitals must decide whether to embrace this shift or ignore it.

JAMA Network Open, 2023

Patients overwhelmingly want immediate access to test results… even abnormal ones

A survey of 8,000+ patients at U.S. medical centers found that 96% prefer receiving test results instantly through online portals, even before their doctor has reviewed them. The findings challenge concerns about early disclosure causing harm, though some patients reported increased worry when results were abnormal.

New England Journal of Medicine, 2022

During an awake craniotomy for resecting part of my brain tumor, I faced a high-stakes decision I needed to make in collaboration with my neurosurgeon

“Later, awakening with bleary eyes in the neurological intensive care unit, I asked the nursing staff why my muscles were sore. I felt like I’d run a marathon.”

JAMIA Open, 2025

Can AI help patients understand their medical notes?

Researchers tested whether ChatGPT, Claude, and Google Gemini could accurately explain clinical notes to patients using patient-written questions. ChatGPT with personalized prompts performed best, suggesting AI could become a powerful tool for helping patients understand their own health information.