Patient & Researcher Blog
Here I aim to capture what I am learning as a newbie researcher from a patient perspective.
Living with a slow growing brain cancer
It is taboo for researchers to talk about their work before it is published.
I think that’s a bummer.
My favorite part about research is learning new things in real time. Here I share my observations as a learner and my n of 1 (personal) findings as a patient.
Note: I started blogging about brain cancer in 2008, at age 29.
I had no background or knowledge about healthcare when I began. Please excuse typos and other misconceptions. What you read here is me in real time, like a time capsule.
There are more than 500 posts here. Use this search to look for something specific. Good luck!
Other people's cancer
Sometimes I am so pissed at the world of brain cancer that I look at other cancers like they are inferior and not as crazy or as bad. But that is a bullshit mentality. I look at this girl and all the fucked-up-ness she's endured and realize that all cancers are evil.
A little tumble down the stairs can't keep me from fighting cancer
The HR people told me I should leave and go to the hospital to get checked out. But I couldn't... today was an important day because I had to go to the UC Davis AYA Cancer Advisory Board meeting. There was no way I was going to miss my first meeting. I didn't want to be a flake.