Patient & Researcher Blog
Here I aim to capture what I am learning as a newbie researcher from a patient perspective.
Living with a slow growing brain cancer
It is taboo for researchers to talk about their work before it is published.
I think that’s a bummer.
My favorite part about research is learning new things in real time. Here I share my observations as a learner and my n of 1 (personal) findings as a patient.
Note: I started blogging about brain cancer in 2008, at age 29.
I had no background or knowledge about healthcare when I began. Please excuse typos and other misconceptions. What you read here is me in real time, like a time capsule.
There are more than 500 posts here. Use this search to look for something specific. Good luck!
Dear everyone with an oligoastrocytoma: Your diagnosis just changed
As more and more pathologists and doctors begin treating patients based on the genome of their tumor it only makes sense for the WHO to update their classification of CNS tumors. Because science.
David, Part 1: When your brain tumor friend starts hospice
That was the weirdest fucking goodbye of my entire life.
MRI one-year post Temodar chemotherapy
Since I am psychic, and have answered a million questions about brain scans, I am going to answer all the questions I know you have.
Talking about median survival time with friends
My friend's reaction reminded me that most people don't know the scope of my diagnosis. I think it is best to keep the details here, on this blog. It is a positive thing for people to be proud of their friend Liz, a "brain cancer survivor."