From beginning to end: this was my EEG experience

PHOTO: Asking the lab technician to take this photo was really awkward.

PHOTO: Asking the lab technician to take this photo was really awkward.

10 p.m. to Midnight: Try not to fall asleep at my usual bedtime.

Midnight to 4 a.m.: Sleep.

4 to 6:45 a.m.: Try to stay awake!

6:45 to 8 a.m.: Get the EEG.

At the EEG/sleep lab a technician asked me a series of questions.

What medications do you take? At what time did you wake up? Are you left or right handed?

(I said I'm both handed, but didn't ask why that was important. Dang! I like to know these things.)

She took out a tape measure and measured the widest part of my head. Then she made markings all over my scalp and forehead with a red marker. The markings were where she would stick the electrode-thing-ys. I am sure that’s what the professionals also call it.

After that I laid down and she used cotton balls to apply sticky material to my head. The electrodes were stuck to my head with the sticky material and the cotton balls were put on top to make everything stay in place. The electrodes on my forehead were held down with paper tape.

Fun fact: I learned a heartbeat can interfere with the reading of brain waves, so two electrodes were placed on my upper-chest area to monitor my heart. These electrodes synch your heart with readings of the brain and rule out things picked up from the heart.

Even more fun act: Some people find out they have abnormal heart conditions after getting EEGs!

The technician dimmed the lights, closed the door, and went into another room to observe me with a fancy night vision camera. She talked to me through a speaker in the room.

Here is what happened during the test:

  • First I breathed normally.

  • Then I had to open my eyes. Then a strobe light activated and I had to close my eyes again--but I could still see the flashing light through my eyelids--because it was right over my face! The strobe would flash for about 30 seconds, then stop and I'd have to open my eyes until it started again. This went on for about 5 minutes.

  • After that I had to hyperventilate for a few minutes. This sucked more than the strobe light. It made me feel very anxious.

  • Next I had to keep hyperventilating but at a slower pace.

  • After 5 minutes of breathing all crazy-like I was asked to slow my breathing and fall sleep for the rest of the time. That's a hard task after getting your heart rate up.

When it was time to sleep I was like, "Aw yeah, I am so tired. This is going to be way easy." But then I realized I had to pee. I kept trying to relax but all I could think about was going to the bathroom. But there was no way I could say, "Um, excuse me. Can you unhook all 24 electrodes real fast and just let me use the restroom?"

I think I fell asleep for a tiny bit. The only way I can confirm this (in my head) is because I remember having a short dream. Then I remember waking up, holding it in, drifting off, waking up, having bathroom anxiety, drifting off, etc. On and on this went until I could hear the technician rustling around in the other room.

When she came in I asked if she could take my picture (see image above). I said, "Sorry I probably didn't sleep, I had to go to the bathroom the whole time." She said, "Actually, you did fall asleep." Good to know.

I asked if she could see anything significant in the EEG but she said she couldn't tell me because that would be "practicing medicine" and she is not a doctor.

After removing all the electrodes I rushed to the restroom.

One more thing:

Super Awesome Nurse asked me to stop driving until after the EEG and my MRI this week--just to be on the safe side (especially since I've had to pull over three times in the past week due to weird vision/sensation issues).

I want to thank my friend Stephen who picked me up from the hospital at 8:15 this morning to drive me home. Friends are amazing.

I was going to sleep from 9 a.m. until noon and then go to work, but I got an e-mail from my cool co-workers saying I should take the day off and rest. Sometimes I completely forget that I owe it to myself to relax and rest when I need to. Brett tells me this all the time and I don't hear it anymore when it comes from him. When I hear it from other people it becomes more real. That is the sad truth.

Liz Salmi

Liz Salmi is Communications & Patient Initiatives Director for OpenNotes at Beth Israel Deaconess Medical Center in Boston. Over the last 15 years Liz has been: a research subject; an advisor in patient stakeholder groups; a leader in “patient engagement” research initiatives; and an innovator, educator and investigator in national educational and research projects. Today her work focuses on involving patients and care partners in the co-design of research and research dissemination. It is rumored Liz was the drummer in a punk rock band.

https://thelizarmy.com
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Will this EEG determine once and for all if I have having increased seizure activity?