Hi. My name is Liz and I have brain cancer. This blog acts as my personal journal, communication forum and health care soap box.
In 2008 I was diagnosed with a grade II gemistocytic astrocytoma brain cancer when I was 29-years old. It sucked.
But guess what? I’m still here. Still kicking ass. If anything changes I will let you know.
My brain cancer stats
Tumor type: Glioma
Age at diagnosis: 29 (September 2008)
Age at recurrence: 29.5 (February 2009)
Grade: WHO grade II, Gemistocytic Astrocytoma (I like to call it a 2+)
Biomarkers tested in 2016:
- IDH-1 positive
- ATRX negative
Surgeries: craniotomy 1 (September 2008), and craniotomy 2.0 (February 2009)
Treatment: 24 months of Temodar (chemotherapy), 5 days on, 23 days off
Anti-nausea meds: Emend, Kytril
Anti-seizure meds: Keppra (3,000mg), Vimpat (150mg), Ativan (1mg as needed)
Current Status: Treatment complete as of April 8, 2011
Now I watch the remaining tumor and wait..
My TEDx Talk
Hear me talk about my first few months after diagnosis. Those were crazy times.