A minor partial seizure

I could tell something was lingering at the borders of my senses. I felt it in my face and my thoughts ricocheted between confusion and absolute clarity.

Brett and I were playing Trivial Pursuit and it was my turn to read him a question. I read the words but I couldn't tell what the words meant. He asked me to repeat the question and when I did I could still not understand the words. (Brett could understand what I was saying and and he had no idea I was feeling anything.)

I knew I needed something. I grabbed a glass to fill with water but I spaced out on why I had the glass. I found my night-time seizure pills. At this point my right hand felt like it did not belong to me, as if it had fallen asleep. I felt more comfortable using my left hand to take my pills and hold the glass.

My right hand began to feel more and more foreign, and at that point I decided that I was having a seizure. It was time to take 1mg of Ativan--just like on TV.

I know this seizure-y sensation isn't significant enough to bar me from driving, but I have to report it to my doctors--and that's OK with me. I know it is best for me to be honest about the things I experience.

What shakes me up about this is that I almost forgot what it felt like to have a seizure come on. I can't let myself forget that epilepsy is a side effect of my brain cancer.

Liz Salmi

Liz Salmi is Communications & Patient Initiatives Director for OpenNotes at Beth Israel Deaconess Medical Center in Boston. Over the last 15 years Liz has been: a research subject; an advisor in patient stakeholder groups; a leader in “patient engagement” research initiatives; and an innovator, educator and investigator in national educational and research projects. Today her work focuses on involving patients and care partners in the co-design of research and research dissemination. It is rumored Liz was the drummer in a punk rock band.

https://thelizarmy.com
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