The post for kids who can't read good

(Note: The title of this blog is a reference to the movie Zoolander.)

I started my 16th cycle of Temodar last night. I am down to 200mg per day. I wonder if this will be a breeze, or if I will still feel crappy by the end of the week – like usual.


On a related/un-related note: I keep having a recurring bad dream that I suddenly lose the ability to read. At a subconscious level I realize I am having these dreams because I heard a story about this on NPR and I have been reading a lot of books on neurology and strange brain agnosias.


Maybe I take the potential of a reading deficit to heart because reading skills are housed in the parietal lobe and I am worried my tumor will grow, thus rendering me illiterate. (That doesn't sound like the right word for it, but still...)

If I can't read, then I can't type and communicate here. I couldn't do my job. I couldn't read all the cool books that make me so happy.

I am stupid for even thinking about this.

Liz Salmi

Liz Salmi is Communications & Patient Initiatives Director for OpenNotes at Beth Israel Deaconess Medical Center in Boston. Over the last 15 years Liz has been: a research subject; an advisor in patient stakeholder groups; a leader in “patient engagement” research initiatives; and an innovator, educator and investigator in national educational and research projects. Today her work focuses on involving patients and care partners in the co-design of research and research dissemination. It is rumored Liz was the drummer in a punk rock band.

https://thelizarmy.com
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