What is family?

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There's a guy I know who thinks he's old. I don't think he's old, but he certainly knows a lot of things.

He's a well educated man (now practicing law from a home office) who wakes up each day around four in the morning, works out on his exercise bike, then drinks coffee and reads the entire San Francisco Chronicle in the old school paper format.

After he reads the paper he sits at his MacBook and reads other news websites. And on most days he will check my blog to see if I have written something new.

This is my best friend's dad. I met him when I was 17 and I was the drummer in his daughter's mildly successful punk rock band. He and his wife came to our shows, made us dinner, and supported our musical dreams. They even supported us in our musical failures—like when the band was robbed and I didn't even have the $60 to buy a bus ticket to get me out of Texas and back to Northern California.

In my early 20s, my very eccentric mother "ran away" to live on a Indian reservation. She didn't leave any way for my brother, sister and I to contact her. As the world my mom left behind crumbled (including debts and owned properties) I felt it my responsibility to “handle” things. It was a complicated time. I didn't know what to do... I just wanted to "call an adult.”

I called my best friend's dad. He never sugar coats the things he says—he is straight forward. He told me I couldn't save anything of my mom's—it wasn't my responsibility to pick up her pieces.

When I was 26 I got a wild idea to buy a house. I thought I knew what I was doing, but when I started talking to my best friend's dad he asked the tough questions about the mortgage and the loan rate. He found out that it was an adjustable rate mortgage and told me the truth. He told me not to buy the house, that the lender I was dealing with was shady because he wasn't giving me exact numbers. I walked away from the deal a little sad—but can you imagine now if I bought that house with the adjustable rate mortgage? He saved my ass. (Two later, with his advice and approval, I bought a condo.)

Around this same time my best friend's mom was facing ovarian cancer. My best friend's dad devoted this time in his life to researching every possible clinical trial for his wife. They met with doctors all over the country and tried numerous experimental surgeries, but his wife eventually died.

And then two years ago, I had a big ass seizure that landed me in the hospital. Upon hearing the news and finding out that I had a "mass" in my brain, my best friend called her dad. He was in town the next day—asking the important questions, demanding answers, advocating on my behalf (because I was too out of it to know what was going on).

He stayed up at night doing research on his laptop. He had me fill out DNR forms, had me assign a power of attorney, and I eventually set up a will. He taught Brett how to be a care partner. He taught us how to be observant. I became an inquisitive patient. He coordinated with my friends to help keep my medical insurance going even though I became unemployed.

We've spent so much time on the phone over the past two years you'd think I would have developed another brain tumor by now due from all the cell phone radiation.

Why am I typing all of this?

Bob: I want to ask you an important question.

Will you do me the honor of escorting me down the aisle for my wedding on Sunday, October 3, 2010?

Liz Salmi

Liz Salmi is Communications & Patient Initiatives Director for OpenNotes at Beth Israel Deaconess Medical Center in Boston. Over the last 15 years Liz has been: a research subject; an advisor in patient stakeholder groups; a leader in “patient engagement” research initiatives; and an innovator, educator and investigator in national educational and research projects. Today her work focuses on involving patients and care partners in the co-design of research and research dissemination. It is rumored Liz was the drummer in a punk rock band.

https://thelizarmy.com
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