What do you want me to learn at the National Brain Tumor Society Summit?

NOTE: I am no longer accepting questions to bring to the NBTS Summit.


Later this week I am attending the National Brain Tumor Society's (NBTS) annual summit in Boston, MA.

According to the website, the Summit brings together "Patients and families, advocates, researchers, clinicians, and government and industry professionals who will connect, share the latest in brain tumor research, celebrate accomplishments, and take action to make our voices heard."

That sounds like some brain tumor-awesomeness to me!

I am attending the Summit because I will be receiving some much need training to be the National Brain Tumor Society's lead state advocate in 2013 (representing California). Twitter users can track Summit with the hashtag #NBTSSummit12.

Hopefully more people than just me will be using this hashtag.

My brain tumor question to all of you is this:

If I am going to be surrounded by the best and brightest in the world of brain tumor research and advocacy, what do you hope I learn? What information do you want me to bring back to all of you so you can read about it here on the blog?

I value your input and commentary.

Background info: Earlier this year I traveled to Washington, DC for the National Brain Tumor Society's annual "Head to the Hill" advocacy event where we got to lobby members of Congress about funding for the National Institutes of Health (and the National Cancer Institute). You can say I'm a nerd about this stuff.

Liz Salmi

Liz Salmi is Communications & Patient Initiatives Director for OpenNotes at Beth Israel Deaconess Medical Center in Boston. Over the last 15 years Liz has been: a research subject; an advisor in patient stakeholder groups; a leader in “patient engagement” research initiatives; and an innovator, educator and investigator in national educational and research projects. Today her work focuses on involving patients and care partners in the co-design of research and research dissemination. It is rumored Liz was the drummer in a punk rock band.

https://thelizarmy.com
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Questions submitted for the 2012 National Brain Tumor Society Summit

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Lift with your head: the other 90% of my brain