Patient & Researcher Blog
Here I aim to capture what I am learning as a newbie researcher from a patient perspective.
Living with a slow growing brain cancer
It is taboo for researchers to talk about their work before it is published.
I think that’s a bummer.
My favorite part about research is learning new things in real time. Here I share my observations as a learner and my n of 1 (personal) findings as a patient.
Note: I started blogging about brain cancer in 2008, at age 29.
I had no background or knowledge about healthcare when I began. Please excuse typos and other misconceptions. What you read here is me in real time, like a time capsule.
There are more than 500 posts here. Use this search to look for something specific. Good luck!
I am the population now: The tale of a brain cancer “n of 1”
There exists no population-level evidence that taking the drug for that length of time is beneficial to the overall survival of people living with my disease.
Transitioning from treatment to survivor “anxiety” is normal
If I listened to my own advice I'd know that this transition phase is going to suck, but I will never have to do it again.