Patient & Researcher Blog
Here I aim to capture what I am learning as a newbie researcher from a patient perspective.
Living with a slow growing brain cancer
It is taboo for researchers to talk about their work before it is published.
I think that’s a bummer.
My favorite part about research is learning new things in real time. Here I share my observations as a learner and my n of 1 (personal) findings as a patient.
Note: I started blogging about brain cancer in 2008, at age 29.
I had no background or knowledge about healthcare when I began. Please excuse typos and other misconceptions. What you read here is me in real time, like a time capsule.
There are more than 500 posts here. Use this search to look for something specific. Good luck!
Who's got my back? Watching the MedX livestream
The essence of Medicine X is that everyone is included in the conference design.
Watch The Open Patient documentary
I am not a doctor. I am not a researcher. I am not going to come up with the cure for cancer on my own. But as a citizen scientist I can play an important role by sharing my experience with you, the reader of this blog.
Meta Open Source: Open sourcing my blog post about "I am the open source patient"
A little over one year ago I wrote a blog post declaring that, "I am the open source patient." Little did I know a few months later I would be contacted by RedHat--a mega distributor of Linux-based services... and they were working on a mini-documentary about open source and healthcare.