Patient & Researcher Blog
Here I aim to capture what I am learning as a newbie researcher from a patient perspective.
Living with a slow growing brain cancer
It is taboo for researchers to talk about their work before it is published.
I think that’s a bummer.
My favorite part about research is learning new things in real time. Here I share my observations as a learner and my n of 1 (personal) findings as a patient.
Note: I started blogging about brain cancer in 2008, at age 29.
I had no background or knowledge about healthcare when I began. Please excuse typos and other misconceptions. What you read here is me in real time, like a time capsule.
There are more than 500 posts here. Use this search to look for something specific. Good luck!
Feeling the love
July is just around the corner and that means it will be my birthday soon. I will be 35, and I say that with great pride because getting older in this uncertain world (i.e., living with an astrocytoma) means appreciating every day.
Holy shit: nearly five years since first seizure, happy birthday to me
I never want to be a woman who hides her age. Every year I am older is another year I am alive. I am living with this disease.
Each moment is bittersweet
“Are you ever afraid that one day I will be dead and you wish you cuddled me more?”