Patient & Researcher Blog
Here I aim to capture what I am learning as a newbie researcher from a patient perspective.
Living with a slow growing brain cancer
It is taboo for researchers to talk about their work before it is published.
I think that’s a bummer.
My favorite part about research is learning new things in real time. Here I share my observations as a learner and my n of 1 (personal) findings as a patient.
Note: I started blogging about brain cancer in 2008, at age 29.
I had no background or knowledge about healthcare when I began. Please excuse typos and other misconceptions. What you read here is me in real time, like a time capsule.
There are more than 500 posts here. Use this search to look for something specific. Good luck!
Nobody knows you’re a patient: Getting used to identifying as a researcher
This sense of being an outsider is due in part to imposter syndrome, and in part due to not having many people who look like me in research. And by “look like me,” I mean people who successfully entered the realm of research through a nontraditional path… as a patient first.
Major life update: From patient to patient-researcher
I am still that punk rock drummer turned brain cancer patient—but now I work for an academic medical center on research and research dissemination.
Spoiler alert, I'm still alive: 10 years later
I have had a brain tumor for one quarter of my life. I am the same person I was before but I am completely changed.