Patient & Researcher Blog
Here I aim to capture what I am learning as a newbie researcher from a patient perspective.
Living with a slow growing brain cancer
It is taboo for researchers to talk about their work before it is published.
I think that’s a bummer.
My favorite part about research is learning new things in real time. Here I share my observations as a learner and my n of 1 (personal) findings as a patient.
Note: I started blogging about brain cancer in 2008, at age 29.
I had no background or knowledge about healthcare when I began. Please excuse typos and other misconceptions. What you read here is me in real time, like a time capsule.
There are more than 500 posts here. Use this search to look for something specific. Good luck!
The meaning of the cancer tattoo
The octopus in my tattoo represents a combination of things. It is the chemotherapy drug that, once passed through the blood-brain barrier, seeps through my brain tissue, finds the tentacles of my tumor, killing cancerous cells. The octopus can also represent a mental image of a smart creature protecting me from the claws of a crab.
Cancer-inspired tattoo is ruling my world
Instead of having a surgery this year (like I've had for the past three years), I'm consenting to a brain cancer-inspired tattoo.
Legit controlling my body with my thoughts
When I control my body with thoughts I am at my most powerful. I wouldn't have realized this if it wasn't for brain cancer.