Patient & Researcher Blog
Here I aim to capture what I am learning as a newbie researcher from a patient perspective.
Living with a slow growing brain cancer
It is taboo for researchers to talk about their work before it is published.
I think that’s a bummer.
My favorite part about research is learning new things in real time. Here I share my observations as a learner and my n of 1 (personal) findings as a patient.
Note: I started blogging about brain cancer in 2008, at age 29.
I had no background or knowledge about healthcare when I began. Please excuse typos and other misconceptions. What you read here is me in real time, like a time capsule.
There are more than 500 posts here. Use this search to look for something specific. Good luck!
Neuropsychological testing
Neuropsychological testing can help doctors find out how damage to your brain may be affecting your ability to reason, concentrate, solve problems, or remember. A doctor may suggest this type of testing if you have a disease that can damage the brain, such as Alzheimer's, multiple sclerosis, dementia, Parkinson's or a brain tumor.
Local news article: Operation life
I was featured in a local paper here in my area. The article is about this blog and some of the advocacy work I do.
Making way for the new me
In the first dream I was cleaning my actual closet in real life. In the second dream I went to the house of someone where I felt like I left items. When I got there I threw away my old things. After I was done, I noticed that their house was messy so I cleaned the whole house for them so they'd come home to a clean house. They thanked me for my work.