Patient & Researcher Blog

Here I aim to capture what I am learning as a newbie researcher from a patient perspective.

Living with a slow growing brain cancer

It is taboo for researchers to talk about their work before it is published.

I think that’s a bummer.

My favorite part about research is learning new things in real time. Here I share my observations as a learner and my n of 1 (personal) findings as a patient.

Note: I started blogging about brain cancer in 2008, at age 29.

I had no background or knowledge about healthcare when I began. Please excuse typos and other misconceptions. What you read here is me in real time, like a time capsule.

There are more than 500 posts here. Use this search to look for something specific. Good luck!

Liz Salmi 10/30/08 Liz Salmi 10/30/08

What my mom thinks

We never thought of "strong" "healthy" independent Liz as getting sick. We should all be closer, but our lives have taken us in different directions and each of us is very independent and don't ask much of each other.

Liz Salmi 10/27/08 Liz Salmi 10/27/08

Oh yeah, I have brain cancer

I realize that I will have brain cancer for the rest of my life. At some point this will not be new, it is just a part of who I am. I suppose all people feel this way when their life changes—they become a parent, the death of a loved one, the passage of a major milestone.