Patient & Researcher Blog
Here I aim to capture what I am learning as a newbie researcher from a patient perspective.
Living with a slow growing brain cancer
It is taboo for researchers to talk about their work before it is published.
I think that’s a bummer.
My favorite part about research is learning new things in real time. Here I share my observations as a learner and my n of 1 (personal) findings as a patient.
Note: I started blogging about brain cancer in 2008, at age 29.
I had no background or knowledge about healthcare when I began. Please excuse typos and other misconceptions. What you read here is me in real time, like a time capsule.
There are more than 500 posts here. Use this search to look for something specific. Good luck!
I'm here. I have cancer. Get used to it.
It has been freeing to let loose a big secret that has defined my life over the past 2+ years. It is like I've come out of the cancer closet.
Dreaming about my friend’s brain surgery
My friend Erin is having her second brain surgery on Wednesday and last night I had this dream.
Not dying from cancer: the ultimate imposter syndrome
My friends celebrate the end of my treatment like I'm some sort of badass. I feel like a fraud because I didn't really do anything. I was a participant in the process.
My old twitching grounds: revisiting where I had a seizure
It is certainly nice now enjoying my small iced latte without the fear of scaring the shit out of baristas.
What a craniotomy scar looks like after a few years
It's nice to see that my scar is still doing well.
Chemo for the last time: I guess I have some survivorship to get used to?
The post chemo transition was kind of difficult for me, as I went from "doing something" to "waiting for the anvil to drop.”
Quoted in The Health Care Blog
Woah! Check me out... I was quoted in a story in TheHealthCareBlog.com. My part is near the end of the article... but you should read the whole thing.
What are your post-brain surgery deficits?
My right-side balance and knowledge of where my body is space is so out of whack that I can't put my leg behind my body and just KNOW WHERE IT IS.
This is almost a haiku
Something I'm afraid of: death. Something I'm not afraid of: death. Funny how that works.