Note to self

On Treatment
Written By Liz Salmi

My energy was low after the last round of chemo pills but has been back to "normal" for a few days now.

The sucky thing in all of this is that when I do feel fatigued or "out of it" I tend to think, "Sheesh--is this what it's going to be like for a while?" But then things come around in a few days.

I need a way to get messages to myself as I near the end of future chemo weeks. What would the message say? I would tell myself to:

  1. Drink protein shakes.
  2. Sit still after eating.
  3. Don't think about food.
  4. Have plenty of videos and books available for calm entertainment.

There, I did it. Now I just have to remind myself to read this blog posting every month.

Liz Salmi

Liz Salmi is Communications & Patient Initiatives Director for OpenNotes at Beth Israel Deaconess Medical Center in Boston. Over the last 15 years Liz has been: a research subject; an advisor in patient stakeholder groups; a leader in “patient engagement” research initiatives; and an innovator, educator and investigator in national educational and research projects. Today her work focuses on involving patients and care partners in the co-design of research and research dissemination. It is rumored Liz was the drummer in a punk rock band.

https://thelizarmy.com
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