You mean you want to pay me?

On Treatment
Written By Liz Salmi

At the end of my appointment today at UCSF I was invited to participate in a study. The purpose of the study is to keep track of people like me to see how we do over time and try to identify the possible causes of brain tumors (as they are unknown). The study will also track the health outcomes for those diagnosed with brain tumors (e.g., how long they live after diagnosis).

A person qualifies for the study if they are diagnosed with a glioma (a type of brain tumor) between September 1, 2006 and March 1, 2010.

I qualify and I said, "Yes!" to participating even before I even realized I would be compensated $40.

Liz Salmi

Liz Salmi is Communications & Patient Initiatives Director for OpenNotes at Beth Israel Deaconess Medical Center in Boston. Over the last 15 years Liz has been: a research subject; an advisor in patient stakeholder groups; a leader in “patient engagement” research initiatives; and an innovator, educator and investigator in national educational and research projects. Today her work focuses on involving patients and care partners in the co-design of research and research dissemination. It is rumored Liz was the drummer in a punk rock band.

https://thelizarmy.com
Previous

Matching cups
Next

Photo: Starting my 4th round of Temodar (chemotherapy)