Patient & Researcher Blog

Here I aim to capture what I am learning as a newbie researcher from a patient perspective.

Living with a slow growing brain cancer

It is taboo for researchers to talk about their work before it is published.

I think that’s a bummer.

My favorite part about research is learning new things in real time. Here I share my observations as a learner and my n of 1 (personal) findings as a patient.

Note: I started blogging about brain cancer in 2008, at age 29.

I had no background or knowledge about healthcare when I began. Please excuse typos and other misconceptions. What you read here is me in real time, like a time capsule.

There are more than 500 posts here. Use this search to look for something specific. Good luck!

Liz Salmi 7/25/18 Liz Salmi 7/25/18

Spoiler alert, I'm still alive: 10 years later

I have had a brain tumor for one quarter of my life. I am the same person I was before but I am completely changed.

Liz Salmi 7/10/17 Liz Salmi 7/10/17

How I chose my new neuro-oncologist

The doctor’s job is to make sure I receive good care, not be my best friend.

Liz Salmi 1/21/12 Liz Salmi 1/21/12

To have a slow-growing brain tumor

"But really, aren't there cases when grade twos just stay a grade two forever?" I implied that with my youth, health and intelligence, someone as awesome as I must be spared from this injustice.