A few things about my chemo video...

I made the "Oral Chemotherapy" video because a lot of people are interested in my treatment. My intention is for the video to show that oral chemotherapy is vastly different than traditional chemo and, while monotonous, it is not as bad in comparison.During the time I take oral chemotherapy (one week a month) I experience periods of nausea, headache, and slight fatigue. However, I have learned that headaches go away if distract myself with activities, and I can avoid nausea by eating small portions of certain foods (hence the footage of me drinking plum juice, making veggie juice, and drinking protein shakes).I want to note that 90% of pills taken in the video are part of my daily regime of anti-epileptic medication. I put this in the video to show the totality of medication consumed by a person with a brain tumor (and I am sure there are people who take even more meds than I do).Lastly, I want to comment on the strong emotional response some people have to the video. Brett has seen the video a million times (he was in the room when I was editing it) and it still makes him teary. I blame this on the music--"Self-Fulfilling Prophecy" by The Silent Game.When I started working on the video I brainstormed song ideas with Brett. I wanted to use something upbeat so the footage wouldn't have a sad overtone. Our first ideas included "Message In A Bottle" by The Police, "It's Time to Party" by Andrew W.K., and "Whip It" by Devo. As soon as "Self-Fulfilling Prophecy" became a idea I couldn't get it out of my head.I used to be in a band with Sam, the guy who wrote the song, and I have always loved his songwriting style. When I heard this song more than a year ago it became an instant favorite. The song is bittersweet, sad, and messed up--just like cancer.

Liz Salmi

Liz Salmi is Communications & Patient Initiatives Director for OpenNotes at Beth Israel Deaconess Medical Center in Boston. Over the last 15 years Liz has been: a research subject; an advisor in patient stakeholder groups; a leader in “patient engagement” research initiatives; and an innovator, educator and investigator in national educational and research projects. Today her work focuses on involving patients and care partners in the co-design of research and research dissemination. It is rumored Liz was the drummer in a punk rock band.

https://thelizarmy.com
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Oral chemotherapy