I've wrestled with a question for most of my life, but I debate myself more and more lately now that I'm all brain cancer-y: Should I live my life as if I will die at a ripe old age, or live every day/week like it could be my last?
I'm not a statistic, but what if I only had 4 more years left of normal brain functioning (at best)? The last thing I'd want to do is sit in a cubicle all day.
Too bad there's no healthcare plan without a cubicle attached.
Liz Salmi is Communications & Patient Initiatives Director for OpenNotes at Beth Israel Deaconess Medical Center in Boston. Over the last 15 years Liz has been: a research subject; an advisor in patient stakeholder groups; a leader in “patient engagement” research initiatives; and an innovator, educator and investigator in national educational and research projects. Today her work focuses on involving patients and care partners in the co-design of research and research dissemination. It is rumored Liz was the drummer in a punk rock band.
