Temodar: the reader participation post

On Treatment
Written By Liz Salmi
temodar_at_night.png

 

Take your Temodar at night
Remember to take your poison at bedtime.

As I start my 12th month of Temodar tonight, I wonder who else out there potentially reading this blog is also using Temodar.

Temodar is supposed to show it's magic through extended use. Back in December 2009 my MRI showed about 3.3mm of tumor shrinkage compared with an MRI in May. I am happy about that.
I am curious:
  • Who else has been on Temodar for more than 6 months?
  • What is your diagnosis, and has Temodar worked for you?
  • Has Temodar made a positive impact in your treatment?
  • Have you had other treatment in addition to Temodar?
Let's talk amongst ourselves...
Liz Salmi

Liz Salmi is Communications & Patient Initiatives Director for OpenNotes at Beth Israel Deaconess Medical Center in Boston. Over the last 15 years Liz has been: a research subject; an advisor in patient stakeholder groups; a leader in “patient engagement” research initiatives; and an innovator, educator and investigator in national educational and research projects. Today her work focuses on involving patients and care partners in the co-design of research and research dissemination. It is rumored Liz was the drummer in a punk rock band.

https://thelizarmy.com
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