October 2011 letter to friends

Surviving
Written By Liz Salmi

An update written by Brett that was sent to my friends and family.

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Friends of the Liz Army,

Wow, it has been a LONG time since we have sent out an update. Once again, it's been a "no news is good news" situation. After watching an exciting game 6 of the World Series at Bob's house in Novato, we drove out to Redwood City on Friday for Liz's MRI and neuro-oncology appointment.

Liz's awesome nurse practitioner was able to give us the good news that everything remains to looks stable. At this point, Liz has been off of chemo since May of this year. There is still some residual tumor around the tumor cavity (aka, the whole in Liz's brain where the bulk of the tumor used to be) but nothing has grown since the last surgery.

Other than that, we had a great trip to Rome at the end of September, and recently celebrated our first wedding anniversary! Can't believe it's almost Christmas time again. Hope everyone has a safe and fun Halloween tomorrow, and Liz wanted me to be sure to mention that you can now "like" the Liz Army on Facebook (http://www.facebook.com/lizarmy).

Sincerely,

Brett (and Liz)

https://thelizarmy.com (now with a mobile phone version!)

Liz Salmi

Liz Salmi is Communications & Patient Initiatives Director for OpenNotes at Beth Israel Deaconess Medical Center in Boston. Over the last 15 years Liz has been: a research subject; an advisor in patient stakeholder groups; a leader in “patient engagement” research initiatives; and an innovator, educator and investigator in national educational and research projects. Today her work focuses on involving patients and care partners in the co-design of research and research dissemination. It is rumored Liz was the drummer in a punk rock band.

https://thelizarmy.com
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