Patient & Researcher Blog
Here I aim to capture what I am learning as a newbie researcher from a patient perspective.
Living with a slow growing brain cancer
It is taboo for researchers to talk about their work before it is published.
I think that’s a bummer.
My favorite part about research is learning new things in real time. Here I share my observations as a learner and my n of 1 (personal) findings as a patient.
Note: I started blogging about brain cancer in 2008, at age 29.
I had no background or knowledge about healthcare when I began. Please excuse typos and other misconceptions. What you read here is me in real time, like a time capsule.
There are more than 500 posts here. Use this search to look for something specific. Good luck!
Should a 32-year-old with brain cancer save for retirement?
Should one save for retirement when they have an incurable form of cancer with a high mortality rate?
Disney’s MRI is a lie
According to a recent brain scan taken at the "What's Inside Your Head?" kiosk at Disney's Tomorrowland, it looks as though I have no abnormal brain tissue. This either means I'm all better or Disneyland is a liar.