Patient & Researcher Blog

Here I aim to capture what I am learning as a newbie researcher from a patient perspective.

Living with a slow growing brain cancer

It is taboo for researchers to talk about their work before it is published.

I think that’s a bummer.

 

My favorite part about research is learning new things in real time. Here I share my observations as a learner and my n of 1 (personal) findings as a patient.

Note: I started blogging about brain cancer in 2008, at age 29.

I had no background or knowledge about healthcare when I began. Please excuse typos and other misconceptions. What you read here is me in real time, like a time capsule.

There are more than 500 posts here. Use this search to look for something specific. Good luck!

On Treatment, 2009 Liz Salmi On Treatment, 2009 Liz Salmi

Manage constipation like a boss

Constipation is the most difficult side effect I’ve had to deal with while taking temozolomide (chemotherapy). In the past it has gotten to the point where I wouldn't want to bend over, sit up, breathe, or hug anyone. I mentioned all of this to my nurse practitioner and she passed along some valuable tips to help me attack constipation before it strikes. I wish it hadn’t taken seven months for me to learn this.

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