Patient & Researcher Blog
Here I aim to capture what I am learning as a newbie researcher from a patient perspective.
Living with a slow growing brain cancer
It is taboo for researchers to talk about their work before it is published.
I think that’s a bummer.
My favorite part about research is learning new things in real time. Here I share my observations as a learner and my n of 1 (personal) findings as a patient.
Note: I started blogging about brain cancer in 2008, at age 29.
I had no background or knowledge about healthcare when I began. Please excuse typos and other misconceptions. What you read here is me in real time, like a time capsule.
There are more than 500 posts here. Use this search to look for something specific. Good luck!
There will be seizures
So now it's just down to me and 3,500mg of Keppra to fight the good fight.
This is your skin on drugs
Between the neurologist and the dermatologist they realized my skin was photosensitive and that I need to wear burly sunscreen—SPF 55+ that shields from the UVA and UVB spectrum.