Patient & Researcher Blog
Here I aim to capture what I am learning as a newbie researcher from a patient perspective.
Living with a slow growing brain cancer
It is taboo for researchers to talk about their work before it is published.
I think that’s a bummer.
My favorite part about research is learning new things in real time. Here I share my observations as a learner and my n of 1 (personal) findings as a patient.
Note: I started blogging about brain cancer in 2008, at age 29.
I had no background or knowledge about healthcare when I began. Please excuse typos and other misconceptions. What you read here is me in real time, like a time capsule.
There are more than 500 posts here. Use this search to look for something specific. Good luck!
Use it or lose it: the no-exercise confession
The bad thing was that the odd sensation I get while exercising due to sensory loss from my last brain surgery was overly weird and disconcerting. That's right... the thing most out of shape was my body's response to brain damage.
Legit controlling my body with my thoughts
When I control my body with thoughts I am at my most powerful. I wouldn't have realized this if it wasn't for brain cancer.