Patient & Researcher Blog
Here I aim to capture what I am learning as a newbie researcher from a patient perspective.
Living with a slow growing brain cancer
It is taboo for researchers to talk about their work before it is published.
I think that’s a bummer.
My favorite part about research is learning new things in real time. Here I share my observations as a learner and my n of 1 (personal) findings as a patient.
Note: I started blogging about brain cancer in 2008, at age 29.
I had no background or knowledge about healthcare when I began. Please excuse typos and other misconceptions. What you read here is me in real time, like a time capsule.
There are more than 500 posts here. Use this search to look for something specific. Good luck!
Screw "watch and wait"... keep fighting
It sounds pessimistic, but let's be real: even when you are moving on with your life and enjoying survivorship or remission, you still worry about cancer from time to time.
Not dying from cancer: the ultimate imposter syndrome
My friends celebrate the end of my treatment like I'm some sort of badass. I feel like a fraud because I didn't really do anything. I was a participant in the process.
Certificate of participation: cancer edition
But a medal and a survivor lap around a track? It makes me feel like entertainment.
Can you be a survivor when you are living with cancer?
If you die from cancer you shouldn't be labeled a "non-survivor".