
Patient & Researcher Blog
Here I aim to capture what I am learning as a newbie researcher from a patient perspective.
Living with a slow growing brain cancer
It is taboo for researchers to talk about their work before it is published.
I think that’s a bummer.
My favorite part about research is learning new things in real time. Here I share my observations as a learner and my n of 1 (personal) findings as a patient.
Note: I started blogging about brain cancer in 2008, at age 29.
I had no background or knowledge about healthcare when I began. Please excuse typos and other misconceptions. What you read here is me in real time, like a time capsule.
There are more than 500 posts here. Use this search to look for something specific. Good luck!
Neurosurgeons: They better want to be there
The average actual salary of a neurosurgeon is $470,000.
Dreaming about my friend’s brain surgery
My friend Erin is having her second brain surgery on Wednesday and last night I had this dream.
What a craniotomy scar looks like after a few years
It's nice to see that my scar is still doing well.
What are your post-brain surgery deficits?
My right-side balance and knowledge of where my body is space is so out of whack that I can't put my leg behind my body and just KNOW WHERE IT IS.
Hemispatial neglect for mixed-handed people
Both hands are equally skilled or equally awkward.
Legit controlling my body with my thoughts
When I control my body with thoughts I am at my most powerful. I wouldn't have realized this if it wasn't for brain cancer.