I stayed up late for no reason except to enjoy it it

Newly Diagnosed2009
Written By Liz Salmi

I stayed up late for no reason except to enjoy it it.

Brett is playing Resident Evil 2/3/whatever on the Wii.

We both keep ourselves entertained each day. Wake up, pills. Breakfast and green tea. Read about neuro-plasticity. Do balance exercises. Shower. Go on Facebook. Read more. Make lunch. Drink more green tea. Go for a walk. Take a nap. Use the Juiceman juicer. Go on Facebook again. Reply to emails. Go to the Kaiser website and respond to doctor emails. Get excited if a doctor says something cool. Make dinner. Watch a TV show on DVD. Drink more green tea and eat dark chocolate. Take nighttime pills. Do balance exercises. Stay up late researching young adult cancer stuff on the Internet. Wish there were more resources for brain cancer patients. Wish there were more resources for women with brain cancer. Wish there were more resources for young adults with brain cancer. Wish there were as many monetary resources for young people with cancer as there are for older adults and children.

I’m not bitter.

Liz Salmi

Liz Salmi is Communications & Patient Initiatives Director for OpenNotes at Beth Israel Deaconess Medical Center in Boston. Over the last 15 years Liz has been: a research subject; an advisor in patient stakeholder groups; a leader in “patient engagement” research initiatives; and an innovator, educator and investigator in national educational and research projects. Today her work focuses on involving patients and care partners in the co-design of research and research dissemination. It is rumored Liz was the drummer in a punk rock band.

https://thelizarmy.com
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